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Educational Resources:  Tools to Start the Conversation

VIDEOS (each reference below is a link that opens a new window)

"When I die, recompose me." with Katrina Spade

"WGVU Family Health Matters: Advance Care Planning" 4/16/17

Being Mortal - From Atul Gawande

Palliative Care, a Different Voice in Healthcare: Timothy Ihrig at TEDxDesMoines

Consider The Conversation: A Documentary on a Taboo Subject
Phillip Gould shares his thoughts and insights as he confronts his impending death from esophageal cancer. (2011)

Advance Care Planning: Patients Describe their Experiences 
Cancer & Hematology Centers of Western Michigan 

ZDoggMD: "Ain't no way to die." This is for those who think ACP is only for older people!

The Undertaking
"A good funeral gets the dead where they need to go and the living where they need to be." Thomas Lynch

York Times- Pitfalls for Proxies  

The importance of having an advance directive. Even more important, having a well informed patient advocate. 

Live Your Best Life
What is the most important part of life? For many, it's family. Hear from two families in hospice care who have words of wisdom on how to live your best life.

A Beautiful Death - Going Your Way
 - Flash)
A video about an 86-year-old who said “no more hospitals, no more chemo.” He faced the end on his own terms. 

Aging in Iowa: Being prepared for the inevitable
When Syndy was trained to be a facilitator for the Honoring Your Wishes program, which encourages people to think about and record their wishes for their deaths, she and her husband realized they needed to have their own discussions about that difficult topic.

Honoring Choices Minnesota: Faith, Culture & Identity Perspectives.
An excellent collection of videos about "the conversation." Honoring Choices Minnesota has nearly 700 videos addressing end-of-life decisions from practically every perspective. 

Are You Prepared for Your Final Days? These people are - CBS News

Showtime: Time of Death

PBS Frontline - Facing Death

Let's Talk about Death with Ellen Goodman

Fox17: Have You Had The Talk?

Katy Butler: "Knocking On Heaven's Door: The Path To A Better Way Of Death

NBC Nightly News airs segment about end-of-life planning

  • NBC medical reporter Nancy Snyderman, MD, recently shared her experiences as a caregiver for her aging parents: "It would be easy to assume that, as a doctor, I could navigate the health care system with ease. But I was as overwhelmed as the next person," she recalled. On NBC Nightly News, Dr. Snyderman discussed with her parents the importance of living wills and putting their desires into writing.

"I'm Dying to Talk with You" by Dave Kampfschulte (Amazing Circles Workshops. Website Link)


Caregiver's Corner Radio: Sanford Freed, CSA inteviews Carol Robinson DNP, RN, CHPN about Advance Care Planning. Listen to episode 44

NPR's Talk of the Town - Nearly everyone has Advance Directives (and peace of mind) in LaCross, Wisconsin Click to listen

During Holland Hospital's monthly segment Jan. 22, 2014 on WHTC 1450 AM, Chaplain David Blauw, Chairman of the Healthcare Ethics Committee at Holland Hospital, and Carol Robinson, Doctor of Nursing Practice & Community Coordinator for Making Choices Michigan, talked with Juke Van Oss and his listeners about "Advance Care Planning: preparing for dealing with personal and family matters if incapacitated" . Click to listen (22 minutes)

Nicky Lewis, MSW and Advance Care Planning Coordinator at Mercy Health Saint Mary's, discusses the importance of "planning ahead", with WGVU's Shelley Irwin on April 8, 2016 Click to listen


Honoring Healthcare Choices Michigan
Michigan Department of Community Health Bureau of Health Systems: An information resource guide to end of life care
Futile Care and Advance Directives
U.S. Catholic - Spelling out your views for end-of-life care is a ‘spiritual’ act  
Greater Grand Rapids End of Life Coalition
Gundersen Lutheran Respecting Choices
The Conversation Project
Honoring Choices Minnesota
Caring Connections - It's about how you live
American Bar Association, Health Decisions Resources
Michigan Center for Clinical Systems Improvement (MiCCSI) - Advance Care Planning
Aging with Dignity- Five Wishes, My Wishes, Voicing My Choices
Before I Die
Community Conversations on Compassionate Care and Compassion and Support
The Conversation Project
Death Café
Death Over Dinner
Engage with Grace
Life Before Death: The Lien Foundation
Funeral Home Comparison Tool: - For the most accurate, up-to-date results, call the local funeral home of your choice. 
Great Lakes Health Connect - Patient Care Documents


"Conversation Stopper: What's Preventing Physicians from Talking with Patients About End-of-Life and Advance Care Planning?" 

Zen and the Art of Dying Well
New York Times Editorial - August 2015

Helping Patients and Doctors Talk About Death
New York Times Editorial - July 2015

Five Tips for Families Facing End-of-Life Care
Time- May 2012

How Doctors Die (PDF)
(It's not like the rest of us, but it is the way it should be)
By Ken Murray MD - 2011

How Doctors Die - Doctors Really Do Die Differently (PDF)
(A follow-up to the article above)
By Ken Murray MD - 2012

Living well with breast cancer by choosing wisely: A conversation with Amy Berman (PDF)
By Harold Pollack - December 15, 2014

Dying in America - (PDF 1.5 mg)
Improving Quality and Honoring Individual Preferences Near the End of Life 
Institute of Medicine of the National Academies

Ira Byock, MD.
Website Link

  • Byock, I. (1997). Dying well: The prospect of growth at the end-of-life. Putnam/Riverhead.
  • Byock, I. (2004). The four things that matter most. Simon & Schuster/FreePress.
  • Byock, I. (2012). The best care possible: A physician’s quest to transform care through the end of life. Avery Books.

Colleen Tallen, MD. Website Link

Tallen, C. (2011). Decide while you can: How to make your own medical decisions before someone makes them for you. BigBook Press.

Callanan, M. & Kelley, P. (2012). Final gifts: Understanding the special awareness, needs, and communications of the dying. Simon & Schuster.

Michelle Andrews, NPR- March 2016

Gift of Life Michigan

Funeral Consumer Information Society 

My Mushroom Burial Suit, a TED Talk by Jae Rhim Lee

A Green Burial- Video

American Medical ID

People are sharing...

I want to thank you both for making this (Advance Care Planning) happen for me. The experience really helped me think through some of my wishes. It gave me some specifics to talk about with my children so that they will understand me and my needs better. They will be surprised that I would like to be in residential hospice if that is necessary. I feel more at peace about the future, even though I probably will never wrap my mind around not “being!”
                                                                                  — Judy

Quote from member of audience of I'm Dying to Talk with You - "I just realized my patient advocate died 5 years ago!"  Just one more reason why one should periodically check Advance Directives.  
                                                                                 — Dave K with Amazing Circles

"The Facilitator’s expertise and kind demeanor made this process simple and effective. It also provided a sense of comfort to know that these questions have been addressed and the answers documented."
                                                                                 — B D

"Making an Advance Directive is the responsible thing for an adult to do. Do this when you are healthy and can make your wishes known. An Advance Directive is a gift to the survivors. It's the last gift you can give them."
                                                                                 — C V


Steering Committee

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